Usually a new blog starts as a hey this is a new beginning sort of thing. Well, although the blog is new, what the blog is about couldn't be less new, it's just another day in my life, a continuation. But it's new for you and this forum; so I had best explain the who's what's and whys.
Generally I just check out blogs, I'm not the best at writing. But I find myself wanting to share my story, so here it is, warts and everything.
I am 27 years old and I have M.E (if I could remember how to spell it I would! ). I hear some of you shout oh that's that thing where you get tired; yes yes it is. But it is so much more than that.
I would like to say I was born a happy healthy child, but I wasn't healthy. 8 weeks premature and fighting a battle from day one. Endless hospital visits and treatment followed by more illness and more doctors and hospital and treatment...you get the idea. A constant battle against a plethora of symptoms that no one could link up to diagnose to treat. Being made to feel like no one believed it was real. Until I got older and started losing weight more often and regularly collapsing. But then it was a misdiagnosis. Years went by in this turmoil with no answer.
Then one day someone said two words, Myalgic Ecphamylitis (M.E). Now by this time I was 14 years old and had lost a year of school, friends and family as I was bedridden. I'd say more but I don't remember much of that year other than my bed.
So we finally had a name, but what did it mean. It meant that all those aches in my joints, the stiffness, the sensitivity to light and sound, the headaches, dizziness, lack of strength and mobility, inability to dress myself and on occasion feed myself, the dark hole, the unquenchable tiredness was one illness...One INCURABLE illness.
Now bear all that in mind, that's a lot to take in isn't it. It's a lot to process at 14 too. But again, it was another step in the continuation.
I hope this has left you intrigued and will bring you back to learn more about my journey. Until then, appreciate everything as you never know when the small things become the important things.
